Children With Disabilities in Pakistan
The BMC Health Services Research reports that “children with disabilities make up around 150 million of the billion people with disabilities in the world.” Furthermore, the research articulated a big concern among sub-Saharan Africans who are concerned about their children being treated badly by others in the community, causing them to hide or not seek proper treatment for their children. These stigmas exist everywhere, including the Western world, and they harm children with developmental needs by neglecting their ability to have access to the special care they need. Oftentimes, developmental disabilities affect a child’s cognitive growth, potentially hindering the development of their nervous system, behavior and motor skills. Moreover, certain Mexican, Haitian and Latin American cultures may see a disability (physical or intellectual) as a curse, further ostracizing children with additional needs and developmental disorders.
Oftentimes children with disabilities experience neglect in their formative years due to a lack of resources. This issue is ever present in Pakistan as it is riddled with all sorts of conflict. Children who have additional needs often develop at a slower rate than their peers (talking, walking, sitting later than their peers).
Developmental disorders can cause society to ostracize these children as they are unable to conform to societal norms. This can be a burden to these Pakistani parents in rural lower class areas as the children with disabilities may not be able to take care of themselves, placing the pressure on an extremely codependent relationship between parent and child (including but not limited to; not knowing when danger is prevalent, being unable to function by themselves/without a parent present). According to FaNs “Over 6% of children in Pakistan have developmental disorders” Treatment is oftentimes consolidated in urban areas, leaving the rural Pakistani children with these developmental disorders to suffer.
The Family Network for Kids
The Family Network for Kids (FaNs) has committed to bettering life for the children of Pakistan, primarily those with disabilities. FaNs is an organization and supportive network that uses technology to aid people in rural Pakistan who have a child with disabilities (developmental disorders) to provide sufficient care. Using mhGAP tech, FaNs is training families through interactive technology to educate and equip society/families to cater and care for children with disabilities.
Roleplay technology that plays scenarios through three animated children who teach the dismantling of stigma, as well as allow parents to practice parental management and problem-solving skills. Once a family passes the training, they become champions who will then further equip their communities with the skills to care for children through a peer-supervised group focused on building community. These champions have monthly check-ins with health specialists, keeping the program in order while pursuing the self-sustenance of the champion families. Implemented in Rawalpindi Pakistan, roughly 70 trained families, 36 of those being trained “family volunteers” who do further diligence to the community as they are training 270 families to properly care for their children.
Looking Ahead
Every child dreams and deserves to be understood regardless of their circumstance. FaNs is working to ensure that every child with a disability in Pakistan has the support system to do so. Cultural stigmas contribute to the exclusion of children with developmental disabilities being shunned from society. By doing the work to abolish cultural stigma, the Family Network for Kids is making rural Pakistan a safe space for kids who are normally ignored and taught to suppress themselves. By giving children the space to be themselves, the world becomes a place filled with authentic adults who can focus on bringing change to the world instead of changing themselves for the world.
